Learn about xeroderma pigmentosum (XP) , a rare genetic disease, and about the Xeroderma Pigmentosum Society (XPS), dedicated to helping XP families, patients and those afflicted with similar life-threatening sun-sensitivity disorders.

The XP Society is a 501(c)(3) not-for-profit charitable organization founded in 1995 by Caren and Dan Mahar, whose youngest daughter, Katie, has xeroderma pigmentosum. The organization is a means to provide the XP family support and information needed to cope daily with XP. The XP Society has always been international in its scope and support, since its beginning.

The XP Society offers information, support, advocacy, and protection to the XP family, patient and caregiver while promoting research for a cure.

Disclaimer: These pages are developed by XP families for information and support and should never replace a medical visit or recommendation