How to Help

The XP Society is the international authority for XP family support and information in making intelligent decisions in the care-giving of XP family members. We are dedicated to providing the most up-to-date information and resources as well as providing for families (free of charge) the opportunity to meet other families and experts in the field through Camp Sundown, a unique to the world night camp program and XP family retreat. All this is possible each year through the generous donations of time, talent and monetary contributions. Thank you for your help!



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The Morning Tree

by Austin Reams.

“Under a fig tree, in the blistering morning sun of Galilee, a centurion kills for a sacred scroll.

Did Jesus write a gospel in his own hand? His
disciples say so, and one of their own has stolen it.

Days after the crucifixion, a centurion, Ras, is
tasked by the disciples of Jesus to find the missing
scroll of the man from Nazareth who would be
called the Christ.

Although sunlight can kill him, Ras, a man of war,
searches from the wastelands of Galilee and
Judea to the secret dungeons of the temple in

But Ras has been deceived. People are not who
they seem to be. A hidden truth is revealed under
the morning tree at the tip of a blade: to serve
Jesus with violence is to destroy his teaching . . “

The XP Society is grateful to author Austin Reams for supporting Camp Sundown and the XP Society. For every online purchase of the Morning Tree through this site, Austin Reams will donate $5.00 to the XP Society!

In Association with
Give by doing your shopping at! Books, Music, Video, Toys, Tools, Consumer Electronics, much more! Place all your merchandise orders here, and help the XP Society.

Another way to give Join where a percentage of your on-line purchases will be donated to the XP Society. It will cost you nothing extra and you may qualify for a tax deduction.

Through eBAY sales

Before registering an item for sale, go to “Community” at the top right of your eBay page and click on “Giving Works”. On that page, write in “Xeroderma Pigmentosum Society, Inc.” and follow directions to donate a portion of your proceeds from your sold item to Camp Sundown and the XP Society.

By Mail

Simply mail a donation directly to:

Xeroderma Pigmentosum Society, Inc
437 Snydertown Road
Craryville, N.Y. 12521 USA

Help to spread the word

  • Write letters to friends
  • Write to local newspapers
  • Write or call local radio and TV stations
    Tell them how important XP research is. Relate it to the ill effects of increasing UV radiation due to depletion of the ozone layer, which affects all of us. Much of what XP research may accomplish can also benefit everyone else.


  • Contact XPS to find out how you can help by organizing a fund raiser event or project in your community.

Volunteer to help the XP Society

  • Print this form from your browser, then mail to the address on the form.
  • Several people have volunteered to spend their vacation helping at Camp Sundown.

Work Place Contributions

Employers: contact us on how your company and employees can help through work place contributions. Employees: We participate in the SEFA (State Employee Federated Appeal for NYS employees) #61-00162, CFC (Combined Federal Campaign for government employees), and United Way (by county). Many employers also offer a wonderful matching or even double matching program to help support giving by employees. Ask if yours does! For tax purposes, our federal ID # is 14-1779906. Thank you!

Estate Planning

Contact XPS for further information.


  • Pray for the patients as well as their families. Ask for better support for research.

The XP Society is the international authority for XP family support and information in making intelligent decisions in the caregiving of XP family members.