Global XP Appeal

XP in the world

There are children all over the globe suffering from and dying of Xeroderma Pigmentosum (XP). We currently have appeals from individuals in Nicaragua, Peru, Venezuela, India, the Ukraine,Tanzania,  Cuba, Tunisia, Honduras, Puerto Rico and Morocco. The XP Society is making real progress in providing XP family support around the world.

Due to lack of knowledge and medical care, children are severely affected by this disease and have neither the medical nor financial resources to alleviate their situation. Most will not live to adulthood and in most cases, XP is only one of their worries in survival.

The children and their XP families are very poor. There is an urgent need for sun protective clothing, including wide-brimmed hats, UV-blocking sunglasses, and sunscreens.

In addition to UV protection, they need:

  • Money to purchase food, supplies and building materials for better housing.
  • Basic medicines, including children’s Tylenol and vitamins.
  • Basic first aid supplies, including bandages and dressings.
  • Toys
  • Socks and shoes
  • Anything else that might be useful, including items the other family members can use.

Clothing, sunglasses, and toys do not need to be new; but everything should be in usable condition.

Passing along outgrown sun protective items can be an excellent way for XP patients to help fellow patients less fortunate.

Please send any contributions to:
XP Society Global Appeal
437 Snydertown Rd.
Craryville, NY 12521

The XP Society will sort, clean, and repackage.This is a wonderful way for all of us who often get trapped in the “why me?” to feel we are doing for others in a far worse situation.

Thank you!

The XP Society is the international authority for XP (xeroderma Pigmentosum) family support and information to assist in making intelligent decisions in the care-giving of XP family members.

Leave a Reply